| ~A LETTER, For The Children~ |
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| To Whom It May Concern, I know how very busy you must be, but I must try and reach someone. Many times over the last nine years, I have left phone calls leaving messages on the subject, yet still my voice is not heard!! I have sent mail with no answers back from anyone. At times it leaves me with the same feeling, that we are out here all alone. I would hope if you could possibly find a moment in your very busy day to meet my son Dalton Sky. He was born with a rare and sometimes fatal disease known as Epidemolysis Bullosa or E.B. I am not asking for much, just for someone to maybe notice these very special children and perhaps make others more aware that we as Mothers, are not so alone. There are others of us just out here waiting searching and hoping for even a light of hope. Dalton and I only wish to Mom's already here, as well as those I know shall come after us and perhaps even if its just to let them know there is someone who cares and understands what they as families are going though. I pray as I write this that this will be the time voices could be heard. Thank you for even taking a moment to read this if you can and see my son's web site I made in hopes to reach others and give alittle support even if just emotional. Please have a wonderful day and may the Lord smile down on you always and forever holding you in his faith and love. Sincerely, Dezra Burkes & Dalton Sky.......... We need someone to pay attention to the children.... I myself feel as tho time is not on our side anymore. I see this when I look into his soft little blue eyes. He is growing more and more tired all the time. we need to expose this disorder that leaves little babies to spend life everyday, every sec of everyday with the eqivalent of second degree burns or worse,that come from something as simple as a hug or a kiss. All we are trying to do is draw attention to the children for we can handle suffering and they dont understand... |
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